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IEEE Spectrum on MSNNew Brain Tech Gives Voice to ALS PatientsA myotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects muscle control, and most ...
Spasmodic dysphonia is a rare vocal disorder characterized by a strained, uneven and uncontrolled voice while speaking.
Dr. Yael Bensoussan didn’t always dream of becoming a doctor. She started her career as a professional singer but an injury to her vocal cords eventually altered her journey. This experience sparked ...
Fabry disease is estimated to affect 1 in every 40,000-120,000 people 3, while Pompe affects 1 in 14,000-300,000 4, depending on the geographic area and ethnic group being researched.
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On Rare Disease Day, we spoke to chief executive of the Genetic Alliance UK, Jayne Spink, about using the patient voice to tear down barriers to building evidence for, and securing access to ...
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