Nothing could've prepared columnist Helen Baldwin for her late son Jeffrey's diagnosis of SMA type 1 in the late 1990s.

Liver damage related to Zolgensma gene therapy usually resolves within a few months of treatment, a study found.

Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the ...

Connie Chandler is a columnist for BioNews and the Director of Family Engagement at the nonprofit organization, We Carry ...

In her debut column of "Caring Together," Connie Chandler reflects on her college days, when friends volunteered to help with ...

For a boy with SMA in China, starting Evrysdi (risdiplam) just 12 days after birth was safe and helped him reach key motor ...

Researchers studied 118 SMA type 2 patients and saw their RULM scores stayed higher than expected had their disease kept its ...

Adaptive clothing for spinal muscular atrophy (SMA) is designed to make dressing less challenging. While today’s adaptive clothing puts the focus on function with a range of supportive features, many ...

Drawing on some previous volunteer experience, columnist Sherry Toh takes on a new role at SMA News Today: forum moderator.