BETHESDA, Md. — The Cystic Fibrosis Foundation issued the following statement in response to the recent announcement by the ...
I was bullied at school because my cystic fibrosis made me different from my peers. However, my perspective shifted as I got older, and I learned to embrace the unique qualities that make me who I am ...
My son wasn’t diagnosed with CF until he was an adult and needed a lung transplant to save his life. He struggled to access the care he needed and ultimately passed away. I want his story to spark ...
I found myself crying, staring at my therapist sitting on the other end of Zoom. And it was not in a subtle sort of way where the tears prickle in the corner of your eyes, and you can sniffle your ...
My name is Schyler Kline. I am an adult with cystic fibrosis, and I am an elementary school teacher. My experience with teaching while having CF has been quite diverse over the years. Seven years ago, ...
A biorepository is a place, similar to a library or bank, where biological samples are stored for use in research. Since 2006, the Cystic Fibrosis Foundation has collected and stored samples from a ...
Cystic fibrosis has drastically changed in a single generation. Once seen as a pediatric disease, people with CF are now living into adulthood thanks to groundbreaking treatments and highly ...
As someone who does not benefit from any CFTR modulators, I only have one option for improving my lung function — transplant. But just because it’s my only choice does not mean it’s an easy one to ...